so i was able to return to school this semester after taking last semester off, and was feeling great until i started tapering off the prednisone again. i seriously love and hate that drug. and i can never seem to get below 10mg without starting to get sick again.
this helped us come to the conclusion that the humira hasn't really been doing its job, and i've been feeling well thanks solely to the pred.
soooo we're trying remicade, which is given by infusion. so i've been home most of this week seeing my doc and getting my first remicade infusion.
i'm really hoping this works again. i was on remicade about 5 years ago and it was a huge help...until i switched doctors and he decided to take me off of it because he thought it was too risky.
so this year after everything that happened over the summer, i switched docs again, am back at duke, and my wonderful team of doctors there want to try remicade again. praying for remission again!! it's been a while, and i'd love to be back at that place without being on prednisone.
so there's that. hope everyone is well. :)
2 comments:
Prednisone is God and the Devil all rolled into one. The side effects and long term damage is frightening and horrible but the blast of seeming health you gain is so damned amazing that you're almost willing to shave off ten years if only to keep that strength, even if just for now. I understand, its the only thing left that I respond to and its caused so much hell that sometimes I just want to either give up completely or beg for more sweet prednisone no matter the consequences.
Hang in there hun, you're SO not alone.
I love you more than my birthday!
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